COLORADO PATIENTS TAKING ACTION
We are a coalition of patients, healthcare providers and advocates working to ensure that patients’ voices are heard, patients’ rights are respected, and patients’ needs are prioritized in healthcare policy.
OUR PARTNERS
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This unelected state bureaucracy has the power to determine what doctors, hospitals and pharmacies can pay for lifesaving medicines patients need. Colorado patients deserve a seat on this board.
PATIENT PRIOIRITIES
Access
All Coloradans must be assured that the PDAB will not take any action that will prevent patients from accessing lifesaving medications.
Transparency
Patients and stakeholders deserve to know how their input will be weighed by PDAB members when considering affordability reviews and an upper payment limit. How do testimony, written comment, survey responses factor into their decision making process?
Dialogue
Patients and stakeholders deserve the ability to ask questions of Board members AND get a response. Currently, the conversation is one-sided with patients sharing their concerns but with no direct feedback from Board members.
Non-Discrimination
Patients and stakeholders are appalled by the use of quality adjusted life years - or any other metric that attempts to put a dollar amount based on a quality of life year. While the Board has been instructed not to use QAL Y's in setting an upper payment limit; QALY's and other discriminatory metrics (evLYG) should be excluded from the entire process.
Holistic Approach
Patients and stakeholders have articulated the value of medicines and the importance of the patient/doctor relationship. The scope of review should also include the impact of insurance benefit design ( step-therapy, prior authorization, pharmacy steering, etc.) when considering patient affordability challenges.
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